Eight-year-old Megan Steadman’s immune system is like that of a newborn and needs a special treatment derived from blood plasma to strengthen it.
Production of immunoglobulins was banned in the UK in the 90s over fears about the potential spread of the human version of “Mad cow disease”.
It has since been imported, but is now in short supply and there are calls by patient groups to overturn the ban.
The UK government said it was working to address the supply issue.
Large amounts of plasma are needed to make the treatment, which is used to treat people whose immune systems have failed.
Megan is one of only 5,000 people in the UK with a rare condition called primary immune deficiency.
She had a stem cell transplant last year, which