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Support from the Welsh NHS after sepsis was like being on a rollercoaster “blindfolded”, a Tory politician who survived the illness has said.
AM Angela Burns and the charity UK Sepsis Trust said help for survivors was non-existent.
They want patients to be given more information when they are discharged and follow-up help with their recovery.
More than 10,000 people get sepsis each year in Wales and about 2,000 of them die, the charity said.
People get sepsis when the body attacks itself in response to an infection.
Many recover within 18 months, but some suffer serious long term physical and psychological problems – “post-sepsis syndrome”.
The UK Sepsis Trust says these include post post-traumatic stress disorder (PTSD), anxiety, depression, insomnia, poor